“We provide health care, but there are going to be gaps in the system” — Carrie Stefanson, Vancouver Coastal Health
Mary (not her real name) is a quiet, unassuming woman. At 70, she just wants to live a peaceful life in her spacious townhouse in Gibsons. But the Crown prosecutor in Sechelt and the RCMP just warned her not to have any contact with her son, who suffers from a mental illness, because he is considered a danger to himself, to her, and to members of the public. His whereabouts on the Sunshine Coast are unknown.
David (not his real name), 35, is just out of jail for uttering threats. At this time, there is little help available for him. “We provide [mental] health care, but there are going to be gaps in the system, absolutely,” Carrie Stefanson, public affairs spokesperson at Vancouver Coastal Health, told The Coast Clarion.
At 15, David became delusional and stayed at Children’s Hospital in Vancouver for two months. He had no definite diagnosis for many years, though it was acknowledged that he suffered psychotic episodes. It has only been in recent years that he was diagnosed with schizophrenia, probably inherited from his grandfather.
Medication helped, but as soon as he started to feel better, David would stop taking his meds because he thought he no longer needed them or because the side effects bothered him. Not taking meds invariably led to psychosis, and sometimes delusional and paranoid episodes. He has also been self-medicating with crystal meth since he was 19.
David has rented accommodation in the Vancouver area in the past, but has always lost his housing due to his drug use and psychosis. In 2014, while living in New Westminster, he went off his meds again and became seriously delusional. Anticipating trouble, Mary contacted mental health workers but was told there was nothing they could do unless David came to them voluntarily. Finally, New Westminster police persuaded David to register with New Westminster Mental Health.
By then, his landlady had had enough, and David’s worker at New Westminster Mental Health asked Mary if David could stay with her until they found him new housing in New Westminster. Mary consented, thinking the situation would be temporary.
But finding housing for a person like David proved difficult and, after a few weeks, New Westminster mental health services cut him off, saying he’d been living “too long” with Mary.
Fraser Health Authority covers New Westminster, but Gibsons lies within Vancouver Coastal Health Authority boundaries, so to get help he had to approach Sunshine Coast mental health services on a voluntary basis, which he eventually did.
While Mary’s partner was suffering with terminal leukemia, David’s behaviour was aggressive towards Mary. “I was afraid of him,” she says. “He is over six feet tall and weighs more than 200 pounds. I kept thinking about the mother in Selma Park who was killed by her psychotic son.”
She phoned Sunshine Coast mental health and addiction services in Sechelt. “I was frantic, I was in a house with a dying man and a man who could go psychotic at any moment,” she says. “But all the worker said was ‘What do you want me to do about it? Call the police if he threatens you.’ What I really wanted was tips on how to defuse the situation before it got to that point; I didn’t want to wait until it might be too late.”
Basically, mental health services can do nothing unless a person is certified, Mary says. “Maybe the police will take you to the hospital. A psychiatrist might decide compulsory treatment is necessary, but there are probably no beds. They usually keep you in the hospital overnight and let you go the next day with a prescription. David has been discharged with nowhere to go more than once.”
At home, the situation became almost unbearable. After her partner’s death, a lot of David’s resentment was directed at Mary. He blamed her for calling the police on him in New Westminster and for doing nothing while he was “being tortured” at Children’s Hospital in 1998. When she questioned him about the “torture”, he reported classic schizophrenic symptoms — strange noises, weird smells, and overheard conversations that he assumed were about him.
The delusions (which have grown to include plots by the FBI, the CIA, the KGB and the Illuminati) are amplified by crystal meth. “It makes him feel powerful, invincible,” Mary says. “Though he’s never physically threatened me, he could hurt me and I want to prevent that from happening. But the mental health system isn’t oriented to prevention; they seem to operate on a crisis-management model.”
In 2015, David was officially certified as having a mental illness, for which he blames Mary. The measure was taken in order to force him to take his medication, but it has not made as much difference as Mary had hoped. Mental health and addiction services in Sechelt told Mary they do no drug testing and he could not be forced to seek help for his addiction.
Stints in rehab have not been successful. At one recovery house, the addictions doctor took David off his anti-psychotics because no mind-altering drugs of any kind were allowed. This resulted in him becoming paranoid, not co-operating, and being asked to leave.
In 2016, David was given a subsidized suite, but there was little supervision, and in the fall of 2017 he was evicted for drug use and excessive partying. He moved back in with Mary, because the alternative was homelessness, and this time he was with a girlfriend who also did drugs and had psychological problems.
Their part of the townhouse became a disaster — garbage everywhere, hoarding, no effort to keep things clean. “The mind of someone suffering psychosis often seems to be completely absorbed by delusions,” Mary says. “They aren’t thinking in terms of keeping things clean or what it’s like to have to live with them.”
Last summer David was given his regular shot of medication too late and became delusional, accidentally starting a fire with a hotplate. Mary phoned the police and told the officer she wanted him to go to the hospital for proper care. “The hospital won’t take him,” the officer told her. “If you kick him out, he is going to be homeless.” Mary settled for confiscating the hotplate.
In the next few days, more delusional behaviour followed: David was convinced the next-door neighbour had been entering Mary’s unit via a “secret passageway” when no one was home. Mary made David and his girlfriend leave, and got a no-contact order. Now David was homeless, but it was summer and he lived in a tent.
When the weather turned bad, he asked if he could stay with Mary again, without the girlfriend, until he could go to Burnaby for three to six months of court-ordered rehab and mental health help. As it was supposed to be only a matter of weeks, and because she feared for him being homeless as winter approached, Mary agreed, but the stay quickly became intolerable because of drug use and verbal abuse directed at her. After a month, she asked him to leave, and David is once more homeless.
Mary does not want him living with her again. “David needs a place where he is supervised by trained staff, with drug monitoring, counselling and cleaners. This costs taxpayer money, but those costs would be recovered with savings in terms of less hospital care and decreased involvement of the criminal justice system. In the midst of this housing crisis, there is nowhere for people with severe mental illnesses to go.
“These people are out there, suffering. They are frightened and sometimes angry. David’s treatment in Burnaby is likely to be a waste of public money if he is homeless again afterward. If that happens, there is a danger that he will use meth again because it’s better than feeling hungry and cold.”
Mary has just been told that the treatment in Burnaby is in jeopardy because of his arrest for uttering threats. She believes the system is broken and that families and the general public are expected to take up the slack. “But we aren’t trained to handle people with these problems,” she protests.
David was arrested in Sechelt last Monday. He spent two nights in jail and is out on bail. Both police and the crown prosecutor have warned Mary not to see him because he is a danger to himself and others and because he fosters grudges against her.
When David was in her home, Mary feared for her own safety. Now she fears for his. “I feel as if this will not end until one of us dies,” she says.
When The Coast Clarion asked Carrie Stefanson of Vancouver Coastal Health for comment, she said no one would be available for an interview. She sent an email about the mental-health and substance-use services available on the Sunshine Coast:
“We have six beds in the mental-health and substance-use inpatient unit at Sechelt Hospital. There is an interdisciplinary team that meets in the hospital every day and plans for all patient discharges. This meeting includes members of all of our community support services. These services include:
- four psychiatrists;
- case manager nurses who provide outreach and office based services to patients with persistent mental illness or concurrent disorders in the community;
- outreach mental health workers;
- an intensive case-management team consisting of an outreach nurse and two outreach mental health workers (focused on clients with substance use issues and concurrent disorders);
- a crisis response nurse who coordinates with patients in the Emergency Department and also in the community. She also works with RCMP to do outreach assessment in the community;
- addictions nurses;
- older adult nurses;
- a social worker;
- a housing coordinator;
- a vocational rehab program;
- mental health and addictions counsellors.
“We do our best to keep people in hospital for as long as their health status requires and to plan for their support in the community, but unless a person is certified on extended leave, we cannot mandate them to engage with our services. Housing is an ongoing challenge on the Sunshine Coast, but we do work to find suitable options, if they exist.
“VCH takes its commitment to both patient and staff safety very seriously. Our clients have the right to receive high quality, safe patient care. Likewise, VCH staff deserve to work in settings that are safe and free from violence.”
Mary does not want this article to make people unduly fearful of the mentally ill. This story is specifically about herself and David — not all people with mental illnesses abuse drugs or are potentially violent.
The cure for stigma, she believes, is consistent and appropriate care so that everyone is safe — people with mental illnesses, their family members, and the general public.
Thank you for making this public. Unfortunately it is not news. My son works in the public health field in Toronto with mentally ill people in the community. He’s sees his clients every day to ensure they are housed adequately, have food and are taking prescribed meds. Most of his clients are stable and functioning as well as possible. When they are not, he is mostly able to intervene. It is not a perfect system and probably under threat with the new government in Ontario, but it seems a good model.
As the previous comment states, “Unfortunately this is not news”. My 21 year old son committed suicide three days after the psychiatrist at the VGH Psychiatric Assessment Unit refused to admit him. Since his death, in March 2017, it has been brought to my attention that this is not uncommon. The system is broken and it is costing our loved ones their lives. I am not sure why VCH doesn’t acknowledge this and goes on to list all the services they provide as if all is ok. Their comment states “VCH staff deserve to work in settings that are safe and free from violence” which should go without saying and seems irrelevant to this story.
One of the differences between BC and Ontario mental health services is that Ontario has 70 Assertive Community Treatment Teams (ACT) and BC has only 6. These teams are essential when housing, psychiatric, tertiary and treatment beds is in severely lacking.
I am so sorry for your loss of your son. Your post was spot on. You are absolutely right in calling out the VCH for producing boiler plate and showing zero empathy for what families and patients are going through right now in BC. (The the comment about staff deserving to work in safety was particularly objectional.)
As a parent with a daughter with very limited insight into her diagnosis of schizophrenia I can very much sympathize and relate to this grandmother’s concern and distress. However BC’s Mental Health Act does have the power to require David to take his antipsychotic medication. Under the Extended Leave provision of the Act, David can have “leave” from hospital but be required to have a monthly injection of anti psychotic meds and see the community psychiatric mental health team on a regular basis. The Act provides for this mandatory treatment if his health deteriorates – as it seems to be – and if his threatening behaviour is a concern. It’s not ideal – but until his mental health is stabilized he will not confront his addiction to meth. If he does not show up for his monthly anti-psychotic injection (or submit to blood tests if he is taking oral anti psychotics) then he should be returned to hospital by police. Really, it is a difficult situation and I have great admiration for staff who try to get a mentally ill person on side for treatment. But at some point if there is severe deterioration or dangers we have to impose mandatory treatment. Under the Act, our daughter goes to a clinic for blood tests twice monthly to ensure there is a minimum of antipsychotic drug in her system. It’s not ideal but she is complying in part because she does not wish to go back to hospital. She is a deeply suffering individual but the meds offer her a bit of stability.
If you read the article carefully you will see that it says that David has been certified has compulsory medication but that it hasn’t made as much difference as Mary had hoped it would.
The problem is so immense. If you are unlucky enough to live in the Vancouver Coastal Health region and be 17/18 years old with your first psychosis you will find you have nowhere to go. There is no beds for that age. CAPE at Children’s hospital takes kids up to 16 and adult care starts at 19 so the 17/18 year old kids are left in pediatric wards without proper care. VCH had a mandate to fix this and opened the HOpe centre at LGH, and with that the Carlisle Centre but they ONLY take 17/18 yo. if they have substance abuse problems, so for the 38% of boys who have their first psychosis at age 17/18 there is nothing for services. I know this from experience with my child. Watching him descend from delusions to full blown psychosis was heartbreaking but when I reached out to multiple agencies for help the response was to let him “hit bottom” so that he could be forced to get help. The team at the Intensive Youth Outreach Services repeatedly said to call the police and they would make a comment on the file in case I was able to convince him to go to emergency. They never tried to stop the deterioration, rather they wait till it is at its worse. This model must be corrected, we should not be waiting until there are criminal charges or homelessness or they find help with street drugs. Intervention is lacking. Even now as my son is in hospital, looking for help after discharge is disheartening. The amount of help offered to those with ASD diagnosis is needed for this population. We are failing those with psychotic illnesses in BC and particularly in the VCH region.
My heart goes out to Mary and her son. What to do when the system doesn’t help?…depressing, frustrating, completely disheartening. My husband and I waded through 3 years of rattling the chains of the mental health care system in our town to get our son the help he needed . It was like the never ending story and we were afraid of how it would end. It was obvious he needed help but he wasn’t considered sick enough because there were always those that were considered to be sicker. The chances of a person in psychosis requesting help is very slim due to Anosognosia or lack of insight into their illness. They are preoccupied with the theater going on in their mind, what the voices are saying to them or what only they can see. Their brain is broken – they cannot rationalize that they are ill and need help. One needs a healthy brain and a rational mind to be able to do that. Very similar to Alzheimer Disease and related dementia. A local RCMP officer shared that currently 75% of all calls received by the police in our town are related to mental health issues. He said it’s very different work now compared to policing 15 years ago. It seems to me that the government is fine with the streets and parks being the new psych wards and the police and bylaw officers are the wardens. Government can completely wash their hands of any responsibility as living on the streets is free except it’s not. We were finally were able to get our son help and he is currently doing really well. We know this can change very quickly. We are truly thankful for the help available in our town. There are good services and good people in place – just not enough.
I was hopeful that Justin Trudeau would help to improve the mental health system during his term due to his first-hand experience with his own family however I am deeply disappointed that he appears to have completely ignored this sector of health care.
Many thanks to “Mary” and the Coast Clarion for letting the public know about significant gaps in mental health and substance use services. And the comments are full of stories with important messages.
Unfortunately, things might get even worse for people with severe mental illnesses if the still unresolved Charter Challenge to BC’s valuable Mental Health Act reaches its intended outcome. It’s painful to see misguided human rights advocates work to make it even harder for people with psychotic disorders to get the help they need. I’m very much hoping that BC’s new Human Rights Commission develops a solid understanding of the anosognosia, the brain based inability of many people in psychosis to understand that they are ill. I discuss this problem in this article:
https://www.huffingtonpost.ca/susan-inman/bc-mental-health-act-autism_b_14137954.html
Mary’s story and the comments here are all true, tragic and happen every day. The terrible awful truth is that here in Canada, people with serious mental illness are not ALLOWED to be voluntary patients. Even if they suddenly realize that maybe, just maybe, something is not right, and actually ask for help (my son has presented at Emergency wards in BC and Ontario) they are almost always patted on the head and turfed out onto the street. There seems to be a giant conspiracy in Canada against acknowledging mental illness, let alone treating it. In reality it’s not just the patients who have anosognosia — it’s the entire “system.” Would a doctor tell a patient that they needed to hit “rock bottom” before their breast cancer treatment could start? Or diabetes? or MS? or a broken leg?
I can’t wait till medical imaging reaches the point that a simple CT scan will tell a doctor right away that the patient sitting in front of them worrying about the KGB has a serious, life threatening brain disorder. And then they will do something about it. Stat.
I love your comment, Marilyn about the whole system having anosognosia–that’s why they insist on talking only about “mental health”, not mental illness!
Thank you, “Mary,” and the Coast Clarion for letting the public learn about significant gaps in mental health and substance use services. The commenters have also offered stories full of important messages.
Unfortunately, things might get even worse for people with severe mental illnesses if the still unresolved Charter Challenge to BC’s valuable Mental Health Act reaches its intended outcome. It’s painful to see misguided human rights advocates work to make it even harder for people with psychotic disorders to get the help they need. I’m very much hoping that BC’s new Human Rights Commission develops a solid understanding of anosognosia, the brain based inability of many people in psychosis to understand that they are ill.